Beautiful girl attracts 2.4 million followers, surprises with strange disease

Although only 8 years old, Lan Nini has attracted 2.44 million followers. She impresses with her delicate facial features, white skin and sparkling eyes. "Looks like a porcelain doll", "Like an angel"... are popular compliments given to Nini by the online community.

However, behind that beauty lies the heartbreaking story of Nini’s illness. In addition to having difficulty expressing herself, she is also unable to take care of herself.

Having followed Nini for a long time, many internet users were confused by her quiet behavior. Nini was not as active and lively as other children her age. According to GirlStyle magazine, she had a rare disease since she was a child. According to Nini's parents, she did not cry when she was born. Nini even had no reaction to vaccinations.

At that time, Nini's parents were very happy and praised her independence. However, when she was 6 months old, Nini still did not respond to external stimuli. She could not even hold her head straight. Nini's family decided to go to the hospital and she was diagnosed with developmental delay. Nini had to go through a long process of regular check-ups and treatment but the disease still did not improve. After that, she was diagnosed with autism. Nini's parents were heartbroken when they heard their child was diagnosed with the disease for the second time. However, they still did not think that the worst had yet to happen.

The couple spent all their savings on their child's treatment. At the suggestion of friends, they started filming videos of Nini to share on social media. After the videos were posted, Nini quickly received attention from the online community because of her innocent appearance. From there, a doctor accidentally saw the videos and became suspicious of Nini's condition. This person proactively contacted Nini's parents and said that her illness was not simply autism.

Following the advice, Nini's parents decided to go to a major hospital in Beijing (China) for a check-up. Eventually, she was diagnosed with neurodegenerative disease with intracerebral iron deposition level 6 (NBIA6). There are less than 100 similar cases in the world . In addition to intellectual disability, cognitive impairment and possibly autism, motor skills are also affected. Currently, there is no cure for this disease.

Nini’s parents said that she is currently unable to speak and cannot take care of herself in daily life. Although she is 8 years old, Nini still has to wear diapers. Her parents have persistently applied acupuncture and electric shock in the hope that her condition will improve.

In order to pay for her treatment, Nini's parents had no choice but to share her condition on their personal pages. Many people felt sorry for Nini and called her "an angel with broken wings". A famous platform even offered to start a fundraising campaign, but Nini's parents refused to avoid unnecessary disputes.

After a long period of treatment, some netizens noticed that Nini's eyes looked brighter and no longer "empty" as before. The moment she made her first phone call also touched many people.

Photo: Douyin NV.

Source link: https://dantri.com.vn/nhip-song-tre/be-gai-xinh-dep-hut-24-trieu-luot-theo-doi-gay-bat-ngo-khi-mac-benh-la-20240314175516593.htm